Start with the student
Ask what helps the student learn, participate, feel safe, and stay connected. Begin with strengths, goals, preferences, and what has already worked.
“School works better for me when…”
Thrive at School
School support should begin with the whole student: their strengths, goals, relationships, health, learning, and sense of belonging.
Use this guide to prepare, communicate what matters, understand possible supports, and decide what may help a student thrive.
For students, families & educatorsChoose where to begin
You know your student. These tools can help turn what you know into clearer support at school.

The student at the center
School-year game plan
Start anywhere. Return whenever the student’s health, learning, or circumstances change.
Ask what helps the student learn, participate, feel safe, and stay connected. Begin with strengths, goals, preferences, and what has already worked.
“School works better for me when…”
Identify who may need to help: a teacher, counselor, nurse, attendance staff member, coach, Section 504 coordinator, case manager, or administrator.
“If something changes, our first school contact will be…”
Describe how sickle cell affects this student’s school day, what staff should do, who should be contacted, and how missed learning will be handled.
“The support we want clearly documented is…”
Revisit support after hospitalization, an extended absence, a new symptom or treatment, a transition, or a change in learning or well-being.
“The plan is helping when we see…”
Communicate with school
Share only what feels necessary. A diagnosis alone does not tell the school what a student needs; describe the practical impact and the support you are requesting.
Subject: Supporting [Student Name] this school year
Hello [Name],
I’m reaching out as we begin the school year to introduce [Student Name], a [grade]-grade student in [class/program]. [Student Name] is [share two or three strengths, interests, or goals].
[Student Name] also lives with sickle cell disease, which can affect [energy, pain, concentration, hydration needs, attendance, mobility, or another relevant area]. The experience is not the same every day, so communication and flexibility are important.
What helps most is:
[Student Name] currently has [a Section 504 plan/an IEP/a health plan/no formal plan]. I would appreciate a brief conversation about how we can help [Student Name] begin the year feeling supported and included.
Thank you,
[Name]
Subject: Request to discuss school supports for [Student Name]
Hello [Name],
I am requesting a meeting to discuss how [Student Name]’s health is affecting access to school and learning.
We have noticed [brief, specific examples—for example: difficulty completing work after absences, fatigue affecting concentration, pain limiting participation, or stress about returning]. Current supports [are not fully addressing these needs/have not yet been established].
I would like the team to discuss:
Please treat this email as a written request and let me know the next steps, anticipated timeline, and the person coordinating the process.
Thank you,
[Name]
Subject: Return-to-school plan for [Student Name]
Hello [Name],
[Student Name] expects to return on [date] after [an illness/medical care/time away]. We would like the return to focus on reconnection and a manageable path back into learning.
At this time, [Student Name] may need:
Could we confirm what [Student Name] should focus on first, what can be excused or modified, and who will coordinate communication across classes?
Thank you,
[Name]
Subject: Written request to review [Student Name]’s [IEP/Section 504 plan]
Hello [Name],
I am requesting a meeting to review [Student Name]’s current [IEP/Section 504 plan]. Since the plan was developed, we have observed [specific change, unmet need, or example].
I would like the team to review:
Please confirm receipt of this written request and share the next steps and proposed meeting dates.
Thank you,
[Name]
Section 504 plans and IEPs
Neither pathway lowers expectations. Both can identify disability-related needs and document meaningful, individualized support.
Section 504 is a federal civil-rights protection. A student with sickle cell may qualify when the condition substantially limits one or more major life activities or bodily functions.
A plan can document aids, services, and changes to policies or practices that provide meaningful access to school.
May fit when a student needs individualized access support but not specially designed instruction under IDEA.An IEP is developed under the Individuals with Disabilities Education Act. Eligibility requires an evaluation and a determination that the student meets an IDEA disability category and needs special education.
An IEP documents present levels, goals, specialized instruction, related services, accommodations, participation, and progress reporting.
May fit when disability-related needs require specially designed instruction—not only changes to access.Possible supports
Every student with sickle cell is different. Choose supports based on the student’s actual needs and school environment.
Review the plan
If an answer is unclear, write down what is happening and ask the team to revisit the plan.
California rights
This is general educational information, not legal advice. Timelines can include exceptions and rules about school breaks; consult current official guidance for your situation.
A written request for an evaluation or a meeting creates a clear record of what you asked the school to consider.
California generally provides 15 days for a proposed assessment plan, at least 15 days for parental consent, 60 days after written consent for assessment and an IEP meeting, and 30 days for a parent-requested IEP review meeting. Exceptions can apply.
Parents should receive assessment and eligibility documentation. California also provides a right to examine school records and receive copies within five days of an oral or written request.
Parents are members of the IEP team and may invite people with knowledge or special expertise. You may ask for procedural safeguards, interpretation, or communication access.
Get help from a real person
SickleWell can help clarify the school concern, prepare for a meeting, organize questions and information, communicate requests, understand a proposed plan, and follow up on agreed next steps.
Trusted resources
These external resources provide additional information about sickle cell at school, Section 504, special education, and California support systems.