Sickle cell support, reimagined
SickleWell helps people with sickle cell navigate the systems that shape everyday life—from classrooms to emergency care to community.
Rooted in lived experience. Built for systems change.
See what we doWhat we do
We support people with sickle cell in school, in emergency and acute care, and in sports, recreation, movement, and community life.
See the full picture
We help students stay connected to learning and move through transitions with the right plan in place.
We strengthen the moments when timely, evidence-based, compassionate care matters most.
We support children and families in making room for movement, recreation, wellness, and connection—not only the work of managing illness.
Who we are
We know sickle cell personally, and we bring professional experience to the systems where focused support can make a meaningful difference.
Meet the founding teamEducation systems and school advocacy
Public administration and emergency services
Research, youth voice, and lived experience
Choose your next step
Get support, explore a partnership, or invest in a future where people with sickle cell can thrive.